fredag 21. desember 2018

Wrapping up for Christmas and preparing for the new year


Christmas is coming close, and the EST team has been busy as usual up to the last minute. All the activities in the last two weeks mirror the work of the whole semester – both in terms of sizzling discussions, variety of tasks, meetings across continents and effective team work.

Do you ever wonder how the EST team keeps up with weekly meetings despite being spread between different parts of Norway, Australia and visiting stays in London, the US or any other place with an internet connection? Well, it usually looks like this:




Skype has been incredible reliable, whereas the greatest challenge has been the time differences. In good EST team spirit, everybody takes turns in getting up very early or staying up late at night in order to keep in touch when needed. Email, Slack and Dropbox are some of our other digital tools we rely on every day to make our international research possible. 

Here are some of the highlights from the last weeks work:
  •  Åse has submitted the revised protocol for the Cochrane review which is now going to the next step of internal review.
  •  Linn has recently submitted an article for the Norwegian Journal of speech-language pathology about the SLPs practice with stuttering in Norway.
  • Hilde and Elaina are screening the papers for the Prospero article, and Hilde is in lead for the preparation of the manuscript.
  • Kari-Anne, Linn and Melanie are working on the ethics applications.
  • Elisabeth and Linn are planning the survey for the health care nurses.
  • The whole team has continuous discussions on the design and recruitment for the intervention study, which will be the most important decisions for the start of next year and the next working package of the project.

Despite the work load, the Oslo-located part of the team met and enjoyed a lovely pre-Christmas lunch at Linns home where also Ane and Karoline from Statped were invited. We cheered for all the members of the team as well as co-operators, celebrating everything the team has achieved this year with delicious food from around the world and typical Norwegian Christmas beers and sweets.



The EST team is looking forward to 2019 and has great expectations based on the project plan. We would also like to thank you all; you are our readers and followers at the projects home page, blog and Facebook group  - sharing  interest in stuttering, experience, knowledge and valuable feedback.

We wish you all a peaceful Christmas time, holiday season and a happy New Year!

For the EST team, Melanie Kirmess

søndag 9. desember 2018

New minds, new thoughts – Feedback for the EST presentation at the ComPros seminar with Cathrine Snow

During the spring of 2018, the Faculty of Educational sciences at the University of Oslo invited new and existing research groups into a new application process. One of those newly established groups  is the research group Communicative processes (ComPros) at the Department for Special Needs Education (ISP). The main focus addresses the communicative developmental and learning processes in typical and atypical populations across the lifespan.  Hence, all EST-team members at ISP are members of ComPros. If you want to know more about all the different members and projects, check out the ComPros webside: https://www.uv.uio.no/english/research/groups/compros/index.html.

One of the first events organized by ComPros was a research seminar on Thursday, 6th of December 2018 with Professor Catherine Snow from Harvard (to learn more about Professor Snow, please follow this link: https://www.gse.harvard.edu/faculty/catherine-snow ). The EST group took the opportunity to present preliminary ideas and challenges for the intervention study (RCT) we are planning. 
From left: Professor Catherine Snow, Åse Sjøstrand & Linn S. Guttormsen
Åse Sjøstrand and Linn S. Guttormsen did a fabulous job to familiarize the audience with the field of stuttering and the specific challenges considering early treatment, such as high percentage of spontaneous recovery, awareness and social-emotional long term consequences and lacks in the research area, as well as summarizing the EST project so far. 


Linn and Åse presented different scenarios for an RCT and acknowledged especially the ethical challenges with a clean control group. Interestingly, and as hoped with such a seminar with experts from overlapping, but different research fields, the feedback addressed other questions and factors than the EST-team usually discusses with our stuttering experts. 





For example, are we very much concerned about possible negative consequences for the children in an untreated control group, where as Professor Snow and others also pointed to possible impact of the much focus on treatment if not needs. That means  – are we possibly inventing a problem that might just be solved by itself based on a high number of natural recovery? Do we induce or increase speech motor difficulties by focusing too much too early on it?  How could this influence our results? Following this, a good suggestion is to discuss the inclusion of awareness assessments for all groups, the number of control groups (if relocation is needed), and not the less – possible contents of a control group receiving something else than stuttering intervention. 

Professor Snows and other participating researchers extensive experience from studies with children with language disorders gave us many new ideas to consider I the further planning of the RCT.  The role of the kindergarten teachers and their possible previous experience with children who stutter should also be taken into consideration when trying to control external factors that may influence the outcome of our intervention study.

The EST team highly appreciated all comments and questions, and really enjoyed having brilliant new minds contributing with new suggestions to our continuous discussions.

For the EST team - Melanie Kirmess

tirsdag 4. desember 2018

Research stay in London at UCL 2018


This autumn I have been so lucky that I have been a part of Professor Courtenay Norbury’s Literacy, Language and Communication lab, Psychology and Language Sciences, at University College London. Professor Norbury has published many very interesting articles about children with developmental language disorders (see for example here) and the lab has a blog about their research project. They are running the first population based research in UK on language and communication disorders at school entry.


UCL Chandler House where I have had my office
My family came with me to London. After spending June packing and cleaning our house in Sogndal, we moved in to a typical English house in Wimbledon in July; built of bricks with a narrow stairway and a small back yard. It was a big difference from living in a small village with 8000 people to living in a big city with 8 million people. Our two kids have attended the Norwegian School in London, which is an excellent school who uses the many possibilities that are in London to teach their pupils. For example, when Black history month was up in October, the pupils went on a guided tour in St. Paul Cathedral, and when Holocaust was the theme, they visited Imperial War Museum.
Our lovely brick house
Wimbledon centre where we lived















At work, my main focus has been the EST project and our two reviews. My daily work consist of screening papers for the review about implementation quality that we have preregistered in Prospero (here).  Along with the EST team, we have worked hard with preparing the protocol for the Cochrane review and planning the RCT. In addition to this, I have worked on three book chapters about literacy and literacy difficulties in addition to one paper about bilingual children and one paper about early literacy. I have also given a talk about invented writing at UCL, and been a part of celebrating DLD-day. DLD stands for ‘developmental language disorders’, and the goal for DLD-day is to raise awareness of this disorders. Along with the Lilac-lab, I was on a stand at UCL with quiz, poster and cake sale for charity. In our spare-time, we had a wonderful time; London has so much to offer in terms of sightseeing, new food experience, firework at Bonfire night, shopping and pubs. Memories for life!


Afternoon tea with the Lilac lab
DLD-day with Courtenay and Sarah from the lab

Being on a research stay in another university is very educative. You get to see your own practice in a contrastive light of the University you visit. It has been rewarding to have time to write; the office facilities and library access have been very good. I have learned a lot about research methods from attending seminars and lab meetings. I have also learned about how to manage a lab from being a part of the Lilac lab. On the other hand, it is also a bit challenging to join a new work place, a new neighborhood, and for the kids – a new school. In addition to all the positive aspects, it has of course been downs; for example trying to keep up with lunch conversation in English but processing to slow to be an actual good communicator, sickness in the family when there is an ocean between, and we all have missed friends, family and our dog Tilla. However, the up’s are many more! I am bringing back to Sogndal and the EST-team new insights, new friends, and a new network that we will work together with in 2019.

Thank you so much for your warm hospitality Courtenay Norbury and the whole Lilac lab gang! Also, thanks to Western Norway University of Applied Sciences for funding the stay and good colleagues for helping with my teaching Commitments. All the best from Hilde

Me and my family visiting Stonehenge

tirsdag 27. november 2018

Preschoolers who stutter: What and how? - Part 2: A talk with Norwegian SLT, Therese Espegard



Therese Espegard
Our series about working with preschoolers who stutter continues today with speech and language therapist Therese Espegard. In this ongoing series we will be talking to healthcare professionals, speech and language therapists and parents about managing preschool children who stutter. Therese Espegard is a SLT working in her own private practice in Drammen. She has been working with preschool children who stutters for six years, lately in her private clinic, Drammenslogopeden. Here she shares some of her thoughts about treating preschool children who stutters:

What is a common question you get asked about stuttering by parents and/or kindergarten teachers?
In my experience, many parents have heard myths about stuttering. They are often worried stuttering is caused by something they did. A typical example is questions about whether the stuttering can be caused by them tickling their child. Many parents meet at the clinic expecting the stuttering to disappear. This also reflects on the questions that I am asked. I often start the collaboration with the parents by presenting them with information about stuttering, research and prognosis.

Does your service have a waitlist for services? If so, does your service have a protocol for determining who receives access to intervention? 
I do have a waitlist, but I normally prioritize children who stutter. That means I often have the possibility to start early in those cases, proving parents with information, assessing the child, and when its appropriate, start treatment at an early stage.

What factors do you consider when deciding when to start treatment with a preschool child who stutters?
I normally consider how long the child has been stuttering for, whether there is a genetic factor, whether the child is aware its own stuttering and if the child has started to show negative reactions or secondary behavior towards its stuttering.

What is the earliest age you provide stuttering treatment for preschool children?
I consider this differently from case to case, but I have worked with several kids from they are about three years of age, and I have positive experiences with early intervention.

How do you decide which treatment to use with preschool children who stutter?
Again, I consider this from case to case. It depends on how long the child has stuttered, stuttering severity, and awareness. Sometimes I change approach after a while. It is normally a continuous consideration. I do this in close collaboration with the parents. 

What stuttering managing approaches do you use the most with preschool children and why?
Working on Lidcombe with a fun game of explaining.
I work both directly and indirectly. I try to stay in close contact with parents and preschool teachers. I have positive experiences from using the Lidcombe program. Although in my experience, not all parents want to start doing Lidcombe because of the time consume.
Other management approaches I use with children and parents consists of desensitization, giving the child good strategies and experiences with coping. Research show that many children who stutter, can have negative thoughts about their own speech from a very young age. That means getting help early is important. My hope is early intervention will prevent the child from getting into a vicious circle of avoidance and problematic relationship with communication situations, etc.


The green and red piece works as positive reinforcement
together with the verbal contingencies. Published with permission from parents.

I also work closely with the parents as to how they react to the child's stuttering, mention the stuttering and so on. I find that many parents are afraid to talk about stuttering with their child, making the stuttering the pink elephant in the room. In my experience, children are often relieved when they can talk about it and neutralize stuttering. 

I do not always use the word stuttering with the children. Sometimes I will rather use hand puppets and role-play, explaining how words can jump or get stuck. In my experience, children respond well to this. I also work with desensitization by using voluntary easy stuttering and by letting effortless disfluencies into my own speech.

I also introduce fluency shaping techniques and contrasting using concretes like a turtle and a hare, a rock and a piece of cotton. With the older children I draw on elements from CBT. I find using CBT “roadmaps” to be a useful tool when talking about anxiety and stuttering with the older kids.
This turtle exemplifies slow rate, and the preschool child
Therese was working with here wanted the kitten to symbolize smooth stalking. 

On a scale from 1 to 10, 1 being not confident at all and 10 being extremely confident, how confident do you feel about working with preschool children who stutter and their families?
I’d say I feel about a 5 or a 6. I feel confident, but there is a lot still to learn and I wish to still develope as a clinician.  This is a field continuously in change, and I think there will be a lot of interesting research coming on the field, that will be of great importance for me as a clinician.  As far as possible, I try to sign up for all courses on stuttering I can find, so I make sure I stay professionally updated.

Do you have any formal training working with preschool children who stutter? If so, what type of training have you received?
In addition to my formal training as a SLP I have Lidcombe training. I also do my best to attend courses, networks and seminars to keep up to date. Lately, courses I have attended have covered topics from indirect treatment to fluency shaping and CBT. This fall I look forward to learning more about stuttering management doing a MiniKIDS training. It is also my wish and a personal goal to attend the European Clinical Specialization in Fluency Disorders one-year program at some point.

Describe one thing you find rewarding and one thing you find challenging about working with preschool children who stutter?
I find meeting children and the people around them rewarding, as well as the possibility to make a difference and to make the child more confident and less anxious in communication situations.
Some of the biggest challenges might be when a parent stutters and have a hard time coping with their own stuttering. In that case I spend a lot of my time talking to that parent. I believe that parents with a negative view on their on stuttering might reflect that in how they cope with their child’s stuttering.  

In your country, are there national guidelines for treating stuttering in preschool children? If so, what are the key recommendations for working with preschool children who stutter?
I follow the ethical rules made by the Norwegian association for Speech and Language therapists.  Beyond that there is, to my knowledge, no special recommendations for using a special method in treating preschool children who stutter. I consider treatment approaches according to the needs and challenges the child has. Further, I inform parents about the methods that exist and finding the right treatment approach to pursue together with them. I assess the effect of the treatment on a continuous basis. Working with preschool children who stutter, I think it’s important to clarify expectations and not promise anything for results etc.


In your opinion what’s the most important outcome of intervention when working with preschool children who stutter?
Not everyone will be fluent, so the goal is often less fear of their own speech, more coping with the communication situation, reducing the frequency of stuttering, and limiting negative strategies and negative feelings related to their own speech.

Thank you, Therese!

fredag 16. november 2018

Public Health Nurses – a resource for detecting stuttering



Public health nurses are one group of early childhood professionals that have regular contact with young children and also expertise in childhood development. This makes public health nurses important for the EST-project of several reasons. First, combing different competencies in early childhood development makes the team better positioned to carry out this project. Secondly, since the majority of Norwegian children are regularly in contact with public health nurses, they play a important role in enhancing parents’ knowledge about stuttering and distributing information about the project. Given this, this blog post is dedicated to the work that public health nurses do and their competence as early childhood health professionals.





Green Rectangular Toy, Gray Boat Toy, Gray Shovel Toy, and Green Car Toy on Top of Brown Leather Surface
Picture from pexel.com


Norwegian public health nurses are authorized nurses with post bachelor or a master education with specialist qualification in public health nursing. The health care service is a part of the municipal health services that cover the need for nursing services in health promotion and preventive work. Public Health nurses has informative, guiding and advisory tasks within national health programs.
The tasks are mainly linked to the health center for children 0-5 years, school health service in primary and secondary school and health center for youth. The public health nurses follow national healthcare program with 14 consultations, including a home visit to the newborn. The health service also includes environmental protection and refugee health services. Public Health nurses provides services to all children and adolescents with a systematic health offer from "cradle to adult", and with this effort public health nurses is a key player in the municipalities' public health work.
Public health nurses are usually assigned a geographical area where they carry out immunizing and national screening and health programs. Public health nurses give advice and counsel both individuals and groups. Almost 100% of the Norwegian families avail themselves of the services at child health centers-

The aim of the healthcare program is:
• That parents experience coping in parenting
• To contribute to good interaction between parents and children
• To promote physical, mental and social development among infant and toddlers
• Prevent, ward off and uncover violence, abuse and neglect
• Uncovering developmental physical and mental disabilities
• To ensure that children receive follow-up and referring to specialist if necessary

At both 2 years and 4 years consultation, speech and language has a special focus in the health program. Special developed language and speech tests for the children are performed to detect needs for follow-up. Language and speech problems in children are also an important part of the public health nurse education. Public health nurses work in multidisciplinary teams like schools teachers, pedagogic-psycologic services, doctors and other health personnel. Small children regularly attend primary health nurse consultations, thus the public health nurses are an important resource for detecting and providing help for children in language and speech problems, such as stuttering.

Child Playing Front Loader Toy
 Picture from pexel.com

Written by EST-member Elisabeth Holm Hansen

References:
Norwegian Nurses Association, (2008) Professional interest group of public health nurses: “Mer enn et sprøytestikk”  Available at: https://www.nsf.no/Content/396553/cache=20162106125759/Helses%C3%B8ster_web1.pdf
Clancy, A., Leahy-Warren, P., Day, MR., Mulcahy, H. (2013).Primary health care: comparing public health nursing models in Ireland and Norway. Nurs Res Pract.2013:426107. doi: 10.1155/2013/426107.  
Dahl, BM. (2018) Challenges and demands in the population-based work of public health nurses. Scand J Public Health. 46:53-58. doi:10.1177/1403494817743897.






fredag 2. november 2018

Preschoolers who stutter: What and how? A talk with Norwegian SLT Gry Line Tokerud Bakke


While our EST-project team is busy working on systematic reviews, collecting literature, reading articles and preparing for our intervention study, we thought it would be fun to use our blog to learn about how other speech and language therapists, healthcare professionals and parents manage stuttering in preschool children here in Norway and around the world.

Our first guest was Norwegian speech and language therapist Gry Line Tokerud Bakke who works in public schools and preschools in south-east Norway.

Gry Line has been working with preschool children who stutter since 2013. She receives five new referrals for preschool children who stutter every year, from either kindergartens or parents. 

Here she shares some of her experiences.






What is a common question you get asked about stuttering by parents and/or kindergarten teachers?
«Do you think my child stutters a lot?» «Do you think this will pass?» «Is this normal?” and «Should I be worried?»

Does your service have a waitlist for services? If so, does your service have a protocol for determining who receives access to intervention?
No, I am the only SLT in our municipality and the child will be added to my caseload immediately. I always contact parents quickly (within two weeks of receiving a referral). In this initial contact, the parents and I plan a meeting to talk and assess the child.

What factors do you consider when deciding when to start treatment with a preschool child who stutters? 
I take into consideration how worried the parents are, if they want direct treatment for their child, and how motivated they are to work with the child. However, when it comes to assessment and counseling towards the preschool and parents - that is something I always do, if a child is referred because of stuttering.

What is the earliest age you provide stuttering treatment for preschool children?
Management approaches that could be labeled as indirect treatment, like changing the surroundings and language environment, and counseling parents and professionals around the child, are given to all children regardless of age. I start giving more structured and direct treatment from the child is 3 years of age.

How do you decide which treatment to use with preschool children who stutter?
It often depends on the parents. Some parents do not want their child to know they stutter, and want advice from me as an SLT on how to approach the stuttering in the right way. Others want their child to work with strategies like breathing, rate, soft and easy stuttering with a SLT, and follows up at home for a while, before they wait and see. Others wants to do something immediately. In that case I would provide more structural treatment that will demand a lot from the parents, like Lidcombe.  
Pixabay

What stuttering managing approaches do you use the most with preschool children and why? Do you use any other management approaches and if so why? What is the main goal of each approach?
In addition to consulting parents and the preschool, I try to visualize some principles for the child. I usually start with raising the child’s awareness around breathing. I play with the child with different toys to blow through and we talk about the breath we use to shout and the one we use to talk. The shouting breath is powerful and is similar to the one we use when blowing a ball high up in the air with a toy. Talking breath is the smooth breath, which allows the ball to be almost kept calm in the air for a long time when we blow. Parents often say that the children can correct themselves after they have seen me and "forget to use talking-breath" and that they then manage to change to a slower speech by using the smooth breath.

In addition, I also work with rate reduction. I often use a car and make a racetrack on the floor. My goal is to show the child how the car will not crash or drive out of the way if we keep a slower pace. Then we try to transfer these "discoveries" to the speech and find that the slower speech makes it easier for others to understand us.
I have used the Lidcombe program with one child before and have just started treatment with a second child. Unlike the other approaches, I like that the program has a specific structure for the progress and the content of every session.
In all approaches, the goal is for the child to achieve better speech flow.

On a scale from 1 to 10, 1 being not confident at all and 10 being extremely confident, how confident do you feel about working with preschool children who stutter and their families?
7. Stuttering is generally one of the fields where I don’t feel so confident. This might be related to the fact that I like fixing things. Stuttering is challenging for myself as a therapist, because I have to find other goals than stutter free speech. With preschool children who stutter I often feel that my work is depending on that of the parents. I find it challenging when they are not following up what I do in therapy, or do not want to talk to their child about stuttering.

Do you have any formal training working with preschool children who stutter? If so, what type of training have you received?
In my formal training as a speech and language therapist, fluency disorders is included as a part of the education. I have attended different courses at Statped over the last years. I was recently counseled on how to use Lidcombe with a child, but do not have training in Lidcombe or any other stuttering management approaches.

Describe one thing you find rewarding and one thing you find challenging about working with preschool children who stutter?
After providing them with information, new knowledge and some advice, I can often see how parents experience their child’s stuttering to be less scary and overwhelming, and they feel in control of the situation. Seeing how parents meet their child with a new sense of confidence and calm when the child is stuttering in very rewarding and gratifying.  At the same time, I find it frustrating in cases where the parents are reluctant to get help because they don’t want their child to “know it stutters”.

In your country, are there national guidelines for treating stuttering in preschool children? If so, what are the key recommendations for working with preschool children who stutter?
On their homepage, The Norwegian Fluency Association describe the legal rights that people who stutter have on treatment, as well as facilitation of the workplace and at school. When it comes to preschoolers, I don’t know about any given recommendations for treatment.

In your opinion what’s the most important outcome of intervention when working with preschool children who stutter?
To provide the child with tools they are able to use if they feel they are stuck. In addition to giving parents tools to reduce their worry and anxiety around stuttering. 
Pixabay

Thank you, Gry Line!

mandag 22. oktober 2018

Stuttering awareness day 2018


“People who stutter have the unique ability to teach the world the greatest lesson of all… to simply listen” – unknown
 
Did you know that October 22nd is International Stuttering Awareness day? International Stuttering Awareness day is an opportunity to educate people in the community about stuttering and how it can affect people’s lives. The EST-project team would like to use this day to bust some myths about stuttering. Here we go!

“People who stutter aren’t as smart as people who don’t stutter
WRONG! – Research has shown that people who stutter are just as intelligent as everyone else!
 
“People who stutter do so because they were tickled too much as children or because their mother was scared during pregnancy”
WRONG! – The exact cause of stuttering is still not known but tickling and fearful expectant mothers are definitely not associated with the cause.
 
“It is helpful to finish sentences for people who stutter so they do not need to keep talking when they are stuttering”
WRONG! – While everyone is different, most people who stutter prefer to speak for themselves (just like everyone else!) and find it frustrating when people interrupt them and finish their sentences for them. So to be a good communication partner, maintain eye contact, give the person you are speaking to as much time as they need to say what they want to say and let them speak for themselves.   

And here are some facts about stuttering. Did you know that:
  1. Childhood stuttering is really common! More than 1 in every 10 children stutter during the preschool years.
  2. Stuttering affects more boys than girls.
  3. Stuttering looks and sounds different in each person. People who stutter can repeat  (sounds, parts of words or whole words), prolong sounds or ‘block’ which is when no sound comes out. Stutters can also be accompanied by secondary, physical behaviors like facial tension, excessive blinking or body movements.
  4. The majority of children will grow out of stuttering naturally however we still aren’t able to predict who these children will be which is why early intervention is essential for all children who stutter!
If you think that your child might be stuttering, contact your local SLP to get help. Effective treatments have been developed for preschool age children, school age children and adolescents. Effective treatments are also available for adults who stutter. If you are an adult who stutters, there is great Norwegian interest group called NIFS that you may like to get in contact with http://stamming.no/ Take care and always remember to be a good listener!

fredag 19. oktober 2018

How to mark the International Stuttering Awareness Day?


22nd of October is the International Stuttering Awareness Day. The theme this year is "Speak your mind". As pointed to by Imhof from the International Stuttering Association, being able to effectively communicate involves many variables. It involves the confidence, the commitment and the determination to say what you want and connect with others. Said in other words, speaking your mind.

The main aim of the International Stuttering Awareness Day is to enhance peoples' awareness and knowledge about stuttering. This can be done in different ways and we encourage everyone to mark this day. The EST-team will mark the International Stuttering Awareness Day by: 
1. writing about stuttering in media
2. writing  about stuttering on this blog
3. talking about stuttering and the awareness day during lunch and other occasions during the day.
4. applying the sea green ribbon to our profile picture on Facebook. Use this link: https://twibbon.com/support/stammering-awareness-day-25. We were too late this year, but next year we are definitely wearing these wristbands on the 22nd of October (and possibly the whole month as well): https://www.stammering.org/get-involved/help-raise-awareness-and-campaign/stammering-awareness-wristbands

See these links if you want to read more about the International Stuttering Awareness Day: 
http://isad.isastutter.org
https://www.stammering.org/get-involved/help-us-raise-awareness/international-stammering-awareness-day-22nd-october
https://www.stutteringhelp.org/content/international-stuttering-awareness-day

Also, you should check out the ISAD online conferences. The conference runs each year from the 1st to the 22nd of October and is completely free. At the online conference you can read interesting papers, watch presentations and "ask a clinician". Use this link: http://isad.isastutter.org

We hope that you all will have a wonderful 22nd of October!